Tuesday, August 3, 2010

Acute

Acute. What does that mean to you? Before Luke was born, the word acute meant geometry. It reminded me of measuring triangles in high school. After Luke and James, acute has taken on an entirely different meaning.

Acute is no longer a memory of Mr. Davis' class in ninth grade. No, it is something much more profound, much more difficult to comprehend. Acute is not a word that a parent wants to hear or for that matter, feel. When I hear the word acute, I cringe.

Medically, I have heard acute many times. It is as if it is "the queen mother of dirty words" (to quote A Christmas Story) in the medical field. No parent ever wants to hear of their child having acute pain or that he is in acute distress. It's just not natural.

This post is not about the word acute in terms of medicine. It is actually about the acute emotional pain that I still feel at times. The pain that is so difficult at times, so unbearable, that only tears can make it go away. I understand why we lost Luke: he was very sick. I understand that he is much better off where he is than what he may have endured here on earth. Although I can comprehend the bigger plan of Luke's life, it doesn't make it easier to accept the fact that Tommy and I lost our child. He is no longer with us. The acute pain of losing him will always be there.

In the blog world, you can find a lot of people just like you: stay-at-home moms, bakers, political junkies, and yes, mothers who have lost a child. I have been fortunate enough to find some amazing moms online who share membership in the same club as I do: those who have lost a baby due to a CHD. I have been able to share my acute pain with them and vice-versa. I have cried with them, vented with them, and have shared my most precious memories of Luke with them. I have found camaraderie with these women and I thank God I have found them.

One thing that I admire about my fellow angel moms is their uncanny ability to be brutally honest on their blogs. I have tried to be as candid as possible on this blog, but many times I have failed. Am I always truthful? Yes. Are there things that I have wanted to say, but haven't had enough courage to do so? Definitely. So, here I am, trying to be Brutally Honest Bernie, praying that I do not offend anyone.

The truth? The truth is that much of this acute pain is due to hurt that I feel has hardened me over the past 2 1/2 years. Don't get me wrong, losing Luke changed me more than I could have ever imagined. But it is what happened after we lost Luke that I believe has hurt me even more. It was the person who would go out of her way not to talk to me so that she wouldn't have to talk about my baby boy. It was the one who told me that the reason she didn't come to his funeral was because it would have been too difficult for her. It was the woman who questioned why we had an open casket and if I saw him take his last breath. It was the priest who didn't call after we lost him, even though I was his employee. It was the person who told my dear friend that I would be alright because I had other children. It was the very pregnant woman smoking at the outlet mall. It was the teenage mother who stabbed her newborn to death so that no one would find out. It was the countless number of babies who are given a death sentence because they are not perfectly formed. It was and continues to be those closest to us who refuse to acknowledge the fact that he lived and died. He lived. He died. I pray that one day they understand that fact and show compassion to us. That they can put aside their self absorption and understand what we face each day: our baby is gone.

Whew! See? Acute emotional pain. I've got it and until I can release it, it will stick with me. I pray that all of you are braver than I am and that you are not holding onto to any acute pain, whether it be physical or emotional. May God bless you all and thank you for letting me vent!

10 comments:

Jessica said...

Oh Bernie! I am so sorry you are in so much pain - and that the actions of others compound that pain rather than help take it away. Miss you!
Jessica

Michelle said...

Bernie, imagine me standing up alone in my living room applauding you. That is how moved I am with this entry. I have the chills, and I'm glad you said what has been eating at you for such a long time. I hope this brings forth some healing in a different way. We are all looking up to you.

The B Family said...

AMEN, Sister! I know it hurts so badly and it is so real in my life, too. I hate it...absolutely.hate.it. The things that you wrote about...the self absorption that stings worse than our loss at times. It's not fair to have to deal with that on top of everything else. But, we do...and you, my friend, inspire me! I am totally in awe of your raw truth. I needed it. Thank you for once again sharing your heart that I love so much.

PS-My Luke sleeps with your Luke's blanket every single night. I think of your sweet boy every evening that I cover his little legs with it. It's a perfect, precious reminder of the fact that our angels were here and have left incredible inprints on our hearts. It brings me joy to know my Annabelle has her own little Luke in Heaven to play with. Thank you again for such a special gift!

Wyatt's Mommie said...

You are an amazing women for holding all that in, and for letting it all out. After the recent loss of my son in June, I feel a lot of what you do. I continue to tell my husband that our true friends have been displayed. I was amazed that so many who I thought would show up at my son's service, never bothered to call. But yet, those who I didn't think would come, came. It's amazing to me how inconsiderate some of my closest friends have been.
Many hugs go out to you for venting your thoughts this way!!!
xoxo Megan

dana brock hageman said...

Bernie, I applaud you on this post. Too many times we are afraid to let out what we are feeling, whether because we are afraid of offending someone or whatever. Sometimes, I think we are afraid of what might actually come out once we have started. I love this post and plan to read some old ones and subscribe to the new ones. May God carry you through all of this with faith and grace. Heart Hugs <3 ,3 ((hugs))

Bethany said...

After my Mom was killed it took me a long time to not be really annoyed with people for a lot of the same reasons you're pointing out here. I still have days where I get annoyed over these things, but it is less. So, really, I don't know if that's good news for you or not. You're definitely not alone in being annoyed by this stuff though.

On a semi-related note, I recently found myself doing something I absolutely hate. After being a fertility patient and struggling with that, I know how horrible it is when people ask, "So, you have kids or are you going to have them?" And I made the mistake of asking someone who it obviously upset. I still feel horrible about it.

Jenncampbell74 said...

Bernie....you said it all sister!!! Much love to you....I am very proud of you for the strength you have...and that you said what you needed to say....YOU GO GIRL!!!! XOXOX

Anonymous said...

About time, Bernie. I've wanted to say it for a long time. :)

I love you.
-Katie

Erin Rocks Life said...

You are so brave to post your true feelings and thoughts and don't ever worry one bit about being offensive - don't think for one minute that you should apologize for it. I know I'm guilty. I'm one who wouldn't go to a funeral because it reminds of my own mortality and my children's mortality and how I would probably lay down and die if I lost one of them.

I have never felt your pain but can imagine it in that I have been a part of parents losing their child. I left nursing because of it - I didn't know what to say at the funerals or to the parents who I ran into at the restaurant or the grocery store after their child died.

I know you're post wasn't intended to provoke apology; however, I want to apologize to you as a friend who was here and could have been there to support you. One of your dear friends called me to let me know about your loss and I let my own selfish worries prevent me from reaching out to you. What I have learned is that death can turn those of us who question their faith into cowards.

I have been slow to grow in faith and still have my daily struggles but I thank you for your honesty. You are teaching more of us than you'll probably ever know.

Long story short - thank you for your honesty. I hope you'll post more of it.

Erin

Anonymous said...

Bernie, Thank you for sharing your pain. No one can understand the pain that is only yours, except our Savior. When you feel that pain, imagine His loving arms around you, holding you and supporting you through the pain. You are an inspiration to us all as mothers. I truly feel blessed to know you, even though we really never met. Our heart baby Khloe' is now 2 and 1/2. We have been blessed to celebrate two birthdays with her. Not a moment goes by that I don't think and realize that we too could have joined the same angel group that you and so many others belong to. At each celebration we especially remember Luke and the countless other families and children we met at TCH. Keep blogging and keep being honest--you are saving and leading souls to Christ through your efforts, although painful. I was so happy to see that you were able to see Mother Theresa's relics, we are in the middle east now and unfortunately missed the opportunity. I am reading her book right now and I see many of her qualities in you---perservering through the pain. May God continue to bless you and strengthen you. Sincerely In Christ,Kiley Ghaddar